The 20 Best Perlman Syndrome Doctors Near Me in Fort Worth, TX

Find the Top Perlman Syndrome Experts and Specialists

The 20 Best Perlman Syndrome Doctors near Fort Worth, TX

Last Updated: 02/22/2026

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MediFind found 10 doctor with experience in Perlman Syndrome near Fort Worth, TX. Of these, 8 are Experienced and 2 are Advanced.

Location
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10 providers found
    Justin E. Decoux
    Advanced in Perlman Syndrome
    Nurse Practitioner
    Advanced in Perlman Syndrome
    Nurse Practitioner

    Texas Health Family Care

    1217 Oakland Blvd., 
    Fort Worth, TX 
     (4.1 miles away)
    Experience:
    10+ years
    Languages Spoken:
    English

    Justin Decoux is a Nurse Practitioner in Fort Worth, Texas. Mr. Decoux has been practicing medicine for over 10 years and is rated as an Advanced provider by MediFind in the treatment of Perlman Syndrome. His top areas of expertise are Hemi 3 Syndrome, Simpson-Golabi-Behmel Syndrome, Megalencephaly-Capillary Malformation Syndrome, and Perlman Syndrome.

    Experienced in Perlman Syndrome
    Medical Genetics | Pediatrics
    Experienced in Perlman Syndrome
    Medical Genetics | Pediatrics

    Cook Children's Physician Network - Genetics

    Fort Worth, TX 
     (0.3 miles away)
    Languages Spoken:
    English

    Mary Kukolich is a Medical Genetics specialist and a Pediatrics provider in Fort Worth, Texas. Dr. Kukolich is rated as an Experienced provider by MediFind in the treatment of Perlman Syndrome. Her top areas of expertise are Micrognathia, 3MC Syndrome, Stickler Syndrome, and Coffin-Lowry Syndrome.

    Experienced in Perlman Syndrome
    Neonatology | Pediatrics
    Experienced in Perlman Syndrome
    Neonatology | Pediatrics

    Fort Worth Neonatology-Pediatrix Medical Group

    1301 Pennsylvania Ave, Neonatal Office, 
    Fort Worth, TX 
     (1.3 miles away)
    Languages Spoken:
    English

    Madeline Keyes is a Neonatologist and a Pediatrics provider in Fort Worth, Texas. Dr. Keyes is rated as an Experienced provider by MediFind in the treatment of Perlman Syndrome. Her top areas of expertise are Omphalocele, Esophageal Atresia Coloboma Talipes, Congenital Athymia, and Necrotizing Enterocolitis.

    Learn about our expert tiers
    Experienced in Perlman Syndrome
    Pediatric Cardiology | Pediatrics
    Experienced in Perlman Syndrome
    Pediatric Cardiology | Pediatrics

    Cook Children's Heart Center

    1500 Cooper St, Third Fl, 
    Fort Worth, TX 
     (1.5 miles away)
    Languages Spoken:
    English

    Kristal Woldu is a Pediatrics specialist and a Pediatric Cardiologist in Fort Worth, Texas. Dr. Woldu is rated as an Experienced provider by MediFind in the treatment of Perlman Syndrome. Her top areas of expertise are Patent Ductus Arteriosus, Tetralogy of Fallot, Ventricular Septal Defects, Pulmonary Atresia with Intact Ventricular Septum, and Heart Transplant.

    Experienced in Perlman Syndrome
    Pediatrics | Medical Genetics
    Experienced in Perlman Syndrome
    Pediatrics | Medical Genetics

    Cook Children's Genetics

    750 8th Ave, Ste 200, 
    Fort Worth, TX 
     (1.5 miles away)
    Languages Spoken:
    English

    Ryan Gates is a Pediatrics specialist and a Medical Genetics provider in Fort Worth, Texas. Dr. Gates is rated as an Experienced provider by MediFind in the treatment of Perlman Syndrome. His top areas of expertise are Micrognathia, Von Gierke Disease, Very Long-Chain Acyl-CoA Dehydrogenase (VLCAD) Deficiency, and PIK3CA-Related Overgrowth Spectrum.

    Experienced in Perlman Syndrome
    Medical Genetics | Pediatrics
    Experienced in Perlman Syndrome
    Medical Genetics | Pediatrics

    Cook Children's Genetics

    750 8th Ave, Ste 200, 
    Fort Worth, TX 
     (1.5 miles away)
    Languages Spoken:
    English

    Candace Gamble is a Medical Genetics specialist and a Pediatrics provider in Fort Worth, Texas. Dr. Gamble is rated as an Experienced provider by MediFind in the treatment of Perlman Syndrome. Her top areas of expertise are Hypotonia, Achondroplasia, Smith-Magenis Syndrome, and Miller-Dieker Syndrome.

    Advanced in Perlman Syndrome
    Hematology | Oncology
    Advanced in Perlman Syndrome
    Hematology | Oncology

    Cook Childrens Dodson Surgery Center

    1500 Cooper St, 
    Fort Worth, TX 
     (1.5 miles away)
    Languages Spoken:
    English

    Kelly Vallance is a Hematologist and an Oncologist in Fort Worth, Texas. Dr. Vallance is rated as an Advanced provider by MediFind in the treatment of Perlman Syndrome. Her top areas of expertise are Reticulohistiocytoma, Histiocytosis, Langerhans Cell Histiocytosis, Bone Marrow Aspiration, and Nephrectomy.

    Experienced in Perlman Syndrome
    Sleep Medicine
    Experienced in Perlman Syndrome
    Sleep Medicine

    Cook Childrens Dodson Surgery Center

    1500 Cooper St, 
    Fort Worth, TX 
     (1.5 miles away)
    Languages Spoken:
    English

    Aarusha Das is a Sleep Medicine provider in Fort Worth, Texas. Dr. Das is rated as an Experienced provider by MediFind in the treatment of Perlman Syndrome. Her top areas of expertise are Cantu Syndrome, Perlman Syndrome, Hemi 3 Syndrome, and Marshall-Smith Syndrome.

    Experienced in Perlman Syndrome
    Pediatric Pulmonology
    Experienced in Perlman Syndrome
    Pediatric Pulmonology

    Cook Childrens Dodson Surgery Center

    1500 Cooper St, 
    Fort Worth, TX 
     (1.5 miles away)
    Languages Spoken:
    English

    Esra Caylan is a Pediatric Pulmonologist in Fort Worth, Texas. Dr. Caylan is rated as an Experienced provider by MediFind in the treatment of Perlman Syndrome. Her top areas of expertise are Duchenne Muscular Dystrophy, Cystic Fibrosis, Trisomy 13, and CHARGE Syndrome.

    Experienced in Perlman Syndrome
    Pediatric Gastroenterology
    Experienced in Perlman Syndrome
    Pediatric Gastroenterology

    Cook Children's Gastroenterology

    1500 Cooper St Fl 2, 
    Fort Worth, TX 
     (2.0 miles away)
    Languages Spoken:
    English

    Bankole Osuntokun is a Pediatric Gastroenterologist in Fort Worth, Texas. Dr. Osuntokun is rated as an Experienced provider by MediFind in the treatment of Perlman Syndrome. His top areas of expertise are Encopresis, Bowel Incontinence, Malnutrition, and Total Intestinal Aganglionosis.

    Showing 1-10 of 10

    Last Updated: 02/22/2026

    What is the definition of Perlman Syndrome?

    Perlman syndrome causes overgrowth in infancy and affects many different parts of the body. Babies with Perlman syndrome are bigger than most babies and have large heads, kidneys, and livers. In addition, they may have low muscle tone, distinctive facial features, and developmental delay. Over time, people with Perlman syndrome have an increased chance to develop Wilms tumor, a rare kidney cancer that primarily affects children. Perlman syndrome is caused by genetic changes (variants) in the DIS3L2 gene. It is inherited in an autosomal recessive pattern. Diagnosis is based on the symptoms, a clinical exam, and may be confirmed by the results of genetic testing.

    When should I see a Perlman Syndrome doctor near Fort Worth, TX?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Perlman Syndrome doctor near Fort Worth, TX?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Perlman Syndrome doctors near Fort Worth, TX?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Perlman Syndrome doctors near Fort Worth, TX?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Perlman Syndrome doctor near Fort Worth, TX?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Perlman Syndrome doctor search results page. 

    Why is it important to get a second opinion from a different Perlman Syndrome doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Perlman Syndrome doctor near Fort Worth, TX?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Perlman Syndrome doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Perlman Syndrome doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Perlman Syndrome doctors near Fort Worth, TX?

    Look for the filter feature on the left side of the Perlman Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Perlman Syndrome doctor that offers video calls?

    Look for the filter feature on the left-side of the Perlman Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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